Overall Marlyn has good experiences with the people that come to her home to care for her husband.
Transcript
No, they didn’t explain anything like that. Of course, by the time you get to that point you’ve been doing everything. So, there wasn’t much that they had to tell me. The relationships with the caregivers themselves has been fantastic. The caregivers are really wonderful people, and with the odd exception, we have just had amazing people. I am so grateful to them because they’re not only doing things that I simply couldn’t do—couldn’t be able, couldn’t bring myself to do with him—but they are so cheerful and fun and funny, and I’m hearing laughing and jokes and all that going on in the room with them when they’re here. And they have conversations with him about sports things, what was happening in some game last night or whatever. Or they’ll be telling stories or just making jokes.
They are phenomenal. I can’t say enough good about the people that they have in the system. Every now and then you get a jerk, but by and large they are so much better than I thought they would be. And I’m just eternally grateful, not only for the system, but for the people in it.
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- Effects of care recipients’ behaviour -MarlynMaryln noticed that care recipients can get caught up in their own needs and not see the impact they have on the people around them.
- Providing Support – MarlynMarlyn had to find a balance between the physical care her husband required and her own limits in performing these kinds of tasks.
- Resources – MarlynMarlyn strongly suggest that caregivers join a support group: you will find people who understand how you feel.
- Interaction with professionals – MarlynWhen her doctor told her she needed to start taking holidays, Marlyn found it much easier to take regular respite.
- Home care and live-in caregivers – Marlyn (sound)Overall Marlyn has good experiences with the people that come to her home to care for her husband.
- Home care and live-in caregivers – MarlynAlthough Marlyn is very satisfied with the homecare services, last minute cancellations can leave her in a difficult position.
- Challenging emotions and feelings – MarlynWhereas outsiders might judge you, Marlyn learned that other caregivers understood her frustrations.
- Impact on health – MarlynTwo years ago, Marlyn hurt her back helping her husband; she still lives with the effects of the injury.
- The future and caregiving -MarlynMarlyn and her husband designed their home to meet their future needs. She is amazed, however, to see how many things could have been better adapted to her husband's disability.
- Providing support – MarlynMarlyn realises, during the interview, that problem solving is a big part of caregiving.